I am inviting the Ehlers-Danlos community to join me for several screenings of my feature-length film ’We Are Visible,’ which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe.
September 2019
Germany – Bad Kissingen
When: September 21, 2019; 8 pm (German time)
The German Ehlers-Danlos Initiative e. V. screens the German version of ‘We Are Visible’ at their annual conference in Bad Kissingen. For more information on how to join the conference, please visit the website of the Ehlers-Danlos Initiative.
You can also join the screening only (without all the expert talks and discussions during the day). For this option please contact vorsitz[at]ehlers-danlos-initiative.de
October 2019
Online Screening – EDS Awareness
When: Saturday, October 19, 2019; 2 pm EST
Chronic Pain Partners exclusively screens an English version (closed captions) of ’We Are Visible’ via their webinar platform once.
Limited to 500 people; no recording of the webinar will be available after the event. This is an exclusive screening only for people who sign up.
For more information and to sign up for this event, read the announcement by Chronic Pain Partners here.
Online Screening – The Mighty
DATE CHANGED!
When: Saturday, November 9, 2019, 2 PM EST. (Old date: Saturday, October 26, 2019; 12 pm PST is cancelled)
The Mighty exclusively screens an English version (with captions) of ’We Are Visible’ in collaboration with EDS Awareness.
Limited to 500 people; no recording of the screening will be available after the event. This is an exclusive screening only for people who sign up before the event.
For more information and to sign up for this event, read the announcement by The Mighty here.
January 2020
Boulder, Colorado, US – Event & Q&A
When: Sunday, January 5th, 2020. 2 PM to 5 PM Mountain Time
Screening starts at 2.30 PM, Q&A with the filmmaker via Skype starts at approximately 4.15 PM.
Where: Boulder Public library, main branch.
This screening event is organized by Nancy Ramsdal for the Boulder EDS support group. If you want to join the life event, please contact me and I connect you to the organizer.
Find the event on Facebook, or in the local newspaper.
Orange, California, US – Event & Q&A
When: Sunday, January 12, 2020. 2 PM.
Where: Chapman University, One University Drive, Orange, CA 92866; Beckman Hall (room 404)
This screening event is organized by Prof. Arthur W. Blaser and is free of charge; the room is accessible.
Attendees, please RSVP, so we know how many people come. Space is limited.
Schedule: 2 PM: Short introduction by the filmmaker; 2.10 – 3.20 PM: Film screening; 3.20 – 4 PM: Q & A with the filmmaker
Parking:
Please look at the campus map:
https://www.chapman.edu/about/_files/maps-and-directions/current-maps/all-parking-map.pdf
The film screening will be in Building number 3 (The school of business, Beckman Hall).
Visitors can park at two major parking structures:
Lastinger entered from Walnut below Wilson Field, and Barrera, at the corner of Lemon and Sycamore.
Lastinger has accessible parking to the south side of the building. Barrera has accessible parking as well.
Please download your PARKING PERMIT here:
Oakland, California, US – Event & Q&A – FULL
When: Sunday, January 19, 2020. 1.30 PM.
Where: 4200 Broadway, Oakland, CA 94611 – Abio Properties
This event is sponsored by The Pain Community and free of charge. The location is wheelchair-accessible.
All attendees need to RSVP. Space is limited to 50 people.
Schedule:
1.30 PM: Short introduction by the filmmaker, Karina Sturm
1:40 – 3.00 PM: Film screening ‘We Are Visible’
3.00 – 4 PM: Q & A with the filmmaker
February 2020
Providence, Rhode Island, US – Event and Q&A
When: New date: February 22, 2020, 2 PM
Where: The public library in North Providence, Rhode Island – 1810 Mineral Spring Ave, North Providence, RI 02904
This event is hosted by Krista Brack and free of charge. The room is wheelchair-accessible.
All attendees, please RSVP to Krista (krista[at]rieds.org)
Following the screening you will be able to ask the filmmaker questions (via Skype)
Penn State, Pennsylvania, US – Event
When: February 25, 2020, 6 PM
Where: Penn State University, 3000 Ivyside Park, Altoona, PA 16601
Harry E Slep Student Center, Room: Pondview
There are several parking lots on campus but please follow your GPS to the above address, which will take you to a parking lot with visitor spots.
This event is hosted by Sue Patterson and free of charge. The room is wheelchair-accessible.
No need to RSVP.
For questions and further information, contact the host Sue directly via sap406[at]psu.edu
Additional event information: https://psualtoona.campuslabs.com/engage/event/5543705
FB Event: https://www.facebook.com/events/188292109084908/
March 2020
Metro DC Support Group Quarterly Meeting – POSTPONED!!!!!
THE MEETING HAD TO BE POSTPONED as the hosts were concerned about the health of our community related to the recent Coronavirus outbreak.
Where: Altavista Condominium, 900 N. Stafford Street, 8th Floor Lounge, Arlington, VA 22203
Metro Stop: Ballston Metro
Street and garage parking available
Program:
Sheri Denkensohn-Trott and Tony Trott, of Happy on Wheels, LLC, are motivational speakers with chronic health issues. They will give a presentation and take questions about developing techniques to cope with life’s challenges.
Film Screening ‘We are Visible’: Filmmaker joins via Skype for a short introduction and then for a Q&A after the screening.
If you would like to join for any part or all of the meeting, please RSVP.
RSVP to eds[at]eds-dc.org
More information: www.eds-dc.org oder https://www.facebook.com/metro.dc.eds
April 2020
Event Flyer
Heel, Netherlands – Conference & Q&A – POSTPONED!!!
THE MEETING HAD TO BE POSTPONED as the hosts were concerned about the health of our community related to the recent Coronavirus outbreak.
When: Saturday, April 4th, 2020, 10 AM – 5 PM (CEST, local time)
Where: Cultureel Centrum Don Bosco, Mgr. Savelbergweg 100, 6097 AE Heel, Netherlands.
Janneke Stassen and Monique Vaneerdewegh are organizing this event and ‘We Are Visible’ will be screened at least once throughout the conference. The filmmaker will be available to answer questions at the event.
For more information, please contact the organizers.
May 2020
Johns Hopkins University – Online Screening
When: May 20, 7 PM EDT
Where: Online
Johns Hopkins University in collaboration with EDS Awareness will screen the captioned version of the film. The film screening will be followed by a Q&A with the filmmaker.
Attendees must register to be able to see the film.
Register here:
https://attendee.gotowebinar.com/register/898316799769741840
July 2020
Boston, USA – 36th Annual Conference, Marfan Foundation
When: July 9-12, 2020, Film will be shown on July 12 in the morning.
Where: Boston
The film screening will be followed by a Q&A with the filmmaker.
This film screening is part of the Marfan Foundation’s annual conference.
The venue is fully accessible.
Attendees must register to be able to see the film at the conference (for the whole conference or only one day). As an official attendee, you can enjoy the program including the film.
More information: https://www.marfan.org/resources/patients/conference
Registration is not open yet. More information will follow soon.
February 2021
Event Flyer EDS Netz Schweiz 
EDS Netz Schweiz Event Flyer We Are Visible Filmscreening
Switzerland – Film and Conference
When: To be announced
Where: Pfarreizentrum Wil, Lerchenfeldstrasse 3, CH-9500 Wil
This event is hosted by Jasmin Polsini, head of the organization Ehlers-Danlos Netz Schweiz.
The room is fully accessible and the event is free of charge.
Attendees must sign up. Space is limited.
Sign up here:
https://ehlers-danlosnetzschweiz.blogspot.com/p/veranstaltungen.html
March 2021
Germany – Film and Conference
‘We Are Visible’ will be shown at a conference of the Ehlers-Danlos Initiative, followed by a Q&A with the filmmaker.
More Events will follow soon.